Guess what?! i’m so excited, i just recently found a lupus group that meets regularily where i live. Its nice to find people who are dealing with the same issues.
i just got word that on top of my lupus i now have asthma. i had it as a child and it i has now returned. meaning no ice cream, alfredo sauce etc mainly dairy products. i’m now on ventolin and hopefully that will clear up this cough i’ve had for 3 months. i’m 23 years old with health problems that a 50 year old should have….sigh
so heres the update……i’m currently on 0.5 mg of clonazapam and their slowly tapering me off. I met with a psychologist the other day. still on cellcept, i’m supposed to be on 8 pills 250mgs each per day, but right now i’m currently on 7. i’ve been exercising regularily i lost about 8 pounds. lifes pretty good right now. i’ve been meeting with a group of people at least once a week. life is good, God is good.
so i’m officially off chemo and just on cellcept. and its doing nothing for me, nothing at all, my skin is exactly the same and i’m supposed to see Dr. Dutz the dermatologist on the 29th. thank goodness theres make up, otherwise what would we do.
I have my last chemo treatment for the 14th of April, after that they will re-evaulate. I think in a way i’m gonna miss having treatments. I know all the nurses in the VGH day care. I leave it in God’s hands, only He knows whats best for me. Thank you for all the prayers where ever they may come from. God is a big part of my life.
so i had my chemo on friday my family left to go for a walk, in one hour i had made friends with all the ladies that were also getting chemo with me. I had a chance to witness and that i did. i read them a short story from my book. 6 hours it took. they called me a "trooper". anyways i’m going to a good walk today to my favorite place in the whole Campbell Valley park, to feed some birds and enjoy the Sabbath.
i’m going for chemo tomorrow, a little bit nervous but I know my family will be with me which is very good i also know God will be with me
i’m going for chemo tomorrow, a little bit nervous but I know my family will be with me which is very good i also know God will be with me
i’m going for chemo tomorrow, a little bit nervous but I know my family will be with me which is very good i also know God will be with me
went for a bone scan a few days ago they had to put two needles but they got some good pictures of my bones. cuz i’ve been complaining of hip and knee pain.


